Comments on: LVAS & Meniere’s http://beingbionic.wordpress.com One Woman's Adventure with Bilateral Cochlear Implants Fri, 10 Jul 2009 19:54:12 +0000 http://wordpress.com/ hourly 1 By: Katrina http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-177 Katrina Fri, 10 Jul 2009 19:54:12 +0000 http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-177 Thanks so much for sharing this story. I have recently been diagnosed with bilateral LVAS. I do not know much about this, and have been researching since the moment I have found it. It is great to have people like you, to take the time and share their experiences. It lets me know I'm not alone. Thanks so much for sharing this story. I have recently been diagnosed with bilateral LVAS. I do not know much about this, and have been researching since the moment I have found it. It is great to have people like you, to take the time and share their experiences. It lets me know I’m not alone.

]]> By: Holly Laws http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-124 Holly Laws Thu, 05 Mar 2009 02:29:48 +0000 http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-124 Thankyou for your story we are from Australia Nsw my son has LVAS he is only 4 months old i also have another son who is 20 months old who does not have this condition yes you are right there is not much information on this subject and i stress every day for my son who has a heart condition as well called SVT We are grtting test done that thay send to america to find out a bit more but all thay realy told us is never to let him play any contact sport or never to get a large hit to the head thay did say we could get him a ski helment wich could prevent further hearing loss but thats not for serten well it would be goog to here of any one who has a baby wityh the same condition and all the best to you! Thankyou for your story we are from Australia Nsw
my son has LVAS he is only 4 months old i also have another son who is 20 months old who does not have this condition yes you are right there is not much information on this subject and i stress every day for my son who has a heart condition as well called SVT We are grtting test done that thay send to america to find out a bit more but all thay realy told us is never to let him play any contact sport or never to get a large hit to the head thay did say we could get him a ski helment wich could prevent further hearing loss but thats not for serten well it would be goog to here of any one who has a baby wityh the same condition and all the best to you!

]]> By: Sondra http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-109 Sondra Wed, 07 Jan 2009 15:55:32 +0000 http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-109 Thank you for your story. First, I hope and pray that you will feel relief in one way or another one day. My heart goes out to you and what you have to live with on a daily basis. I am a mother to a 5 yr. old boy who was finally diagnosed with bilateral LVAS 2 1/2 yrs. ago but he began having his first attack at 13 mos. of age. I hope that our medical industry comes up with better treatment for both LVAS and Meniere's in the very near future. I am grateful for people like yourself who take the initiative to share your story to help those of us who don't have the condition to better understand it, especially when a loved one of ours has it. Best wishes to you for a healthy future. Sondra (Dallas, TX area) Thank you for your story. First, I hope and pray that you will feel relief in one way or another one day. My heart goes out to you and what you have to live with on a daily basis. I am a mother to a 5 yr. old boy who was finally diagnosed with bilateral LVAS 2 1/2 yrs. ago but he began having his first attack at 13 mos. of age. I hope that our medical industry comes up with better treatment for both LVAS and Meniere’s in the very near future. I am grateful for people like yourself who take the initiative to share your story to help those of us who don’t have the condition to better understand it, especially when a loved one of ours has it.

Best wishes to you for a healthy future.

Sondra (Dallas, TX area)

]]> By: SFC Garcia http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-74 SFC Garcia Sun, 09 Mar 2008 20:16:31 +0000 http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-74 I am in the US Army I have been since 1981, my first Attack was in 2003 during the first invasion if Iraq I stayed in Kuwait they diagnosed me with classic vertigo. I was dizzy and vomiting the whole thing it lasted for over a month. I was sent to Iraq last year in November, in Decmeber it started all over again the fullness in the ears the dizziness it has lasted 4 months now they medevaced me out of Iraq and diagnosed mw with Meniers Disease I still have a lot of DR's to go through because of the military issue. thank you for giving me some heads up on what might have to go through V/R SFC Don Garcia I am in the US Army I have been since 1981, my first Attack was in 2003 during the first invasion if Iraq I stayed in Kuwait they diagnosed me with classic vertigo. I was dizzy and vomiting the whole thing it lasted for over a month. I was sent to Iraq last year in November, in Decmeber it started all over again the fullness in the ears the dizziness it has lasted 4 months now they medevaced me out of Iraq and diagnosed mw with Meniers Disease I still have a lot of DR’s to go through because of the military issue. thank you for giving me some heads up on what might have to go through

V/R

SFC Don Garcia

]]> By: Dianna http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-71 Dianna Fri, 29 Feb 2008 08:02:16 +0000 http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-71 Thankyou for writing your story.I do not have Meniere's, but I did originally have viral labyrinthitis which was accompanied by severe vertigo in 1998. It took me two years to compensate for the damage to my inner ears. Then in 2002 I was injured at work and also had been involved in a auto accident in which my Mom was driving in 2004. These incidents caused the vertigo to return, and the damage to my ears worsened. It's so true that this illness is not understood enough and is sheer hell.I was a professional singer rising to the top of my career when this happened to me.I loved life and travel and people. My mother suffered greatly because of this happening to me- she became depressed and was hospitalised. Now my Mom has had a stroke and is in very bad shape. I too feel suicidal because my family doesn't understand ,plus I am losing my Mom and I feel all alone. I started a myspace website with some of my songs, hoping to use it for vestibular disease / stroke awareness. Do you think it's a good idea? Dianna Thankyou for writing your story.I do not have Meniere’s, but I did originally have viral labyrinthitis which was accompanied by severe vertigo in 1998. It took me two years to compensate for the damage to my inner ears. Then in 2002 I was injured at work and also had been involved in a auto accident in which my Mom was driving in 2004. These incidents caused the vertigo to return, and the damage to my ears worsened. It’s so true that this illness is not understood enough and is sheer hell.I was a professional singer rising to the top of my career when this happened to me.I loved life and travel and people. My mother suffered greatly because of this happening to me- she became depressed and was hospitalised.
Now my Mom has had a stroke and is in very bad shape. I too feel suicidal because my family doesn’t understand ,plus I am losing my Mom and I feel all alone.
I started a myspace website with some of my songs, hoping to use it for vestibular disease / stroke awareness. Do you think it’s a good idea?
Dianna

]]> By: Maria http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-45 Maria Wed, 02 Jan 2008 14:51:37 +0000 http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-45 I commend you for sharing your story. I was diagnosed with Meniere's Disease 6 years ago after a violent attack of vertigo/nausea and vomiting. My ears have not been the same since. I suffer from fullness/pressure, tinnitus, occasional vertigo (though not severe) and a chronic sense of being "off-balanced" or "tipsy". Thankfully, my hearing has been preserved. I have been on and off water pills, take a host of medications for anxiety and have even tried physical therapy. Almost a year ago I went for yet one more opinion and was told that I did not have Meniere's Disease, and that at the time of my terrible attack I most likely had labyrinthitis and my body continued to feel the effects and the dizziness was merely "subjective". The doctor told me "you can have tinnitus and pressure without having Meniere's Disease". Wow! I was also told that I might have Vestibular Migraine. No matter what the technical name is for my disesase, the treatment is basically the same: nothing. It is frustrating for me and it is very hard for me to enjoy things at times. If I did not have my husband and 7-year old daughter I would probably just roll over and die. My whole life has been affected. I put off having more children because of the disease. I am angry at the doctors who have given me bad information. I am angry at the doctors who cannot help me and basically think I am not sick enough to treat. I wish you all the best with your health for the New Year and am so glad you have shared your story. Maria I commend you for sharing your story.

I was diagnosed with Meniere’s Disease 6 years ago after a violent attack of vertigo/nausea and vomiting. My ears have not been the same since. I suffer from fullness/pressure, tinnitus, occasional vertigo (though not severe) and a chronic sense of being “off-balanced” or “tipsy”. Thankfully, my hearing has been preserved. I have been on and off water pills, take a host of medications for anxiety and have even tried physical therapy.

Almost a year ago I went for yet one more opinion and was told that I did not have Meniere’s Disease, and that at the time of my terrible attack I most likely had labyrinthitis and my body continued to feel the effects and the dizziness was merely “subjective”. The doctor told me “you can have tinnitus and pressure without having Meniere’s Disease”. Wow!
I was also told that I might have Vestibular Migraine. No matter what the technical name is for my disesase, the treatment is basically the same: nothing.

It is frustrating for me and it is very hard for me to enjoy things at times. If I did not have my husband and 7-year old daughter I would probably just roll over and die. My whole life has been affected. I put off having more children because of the disease. I am angry at the doctors who have given me bad information. I am angry at the doctors who cannot help me and basically think I am not sick enough to treat.

I wish you all the best with your health for the New Year and am so glad you have shared your story.

Maria

]]> By: lisa sharkey http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-9 lisa sharkey Sat, 15 Sep 2007 20:55:23 +0000 http://beingbionic.wordpress.com/living-with-lvas-and-menieres-disease/#comment-9 Thank you for sharing your story. I wish you health. My daugther has bilateral LVAS and is 6 years old. I worry for her everyday. Your right nobody knows about this condition is or what it means. Thank you for sharing your story. I wish you health.
My daugther has bilateral LVAS and is 6 years old. I worry for her everyday. Your right nobody knows about this condition is or what it means.

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